About: Ainsley Grace was born on January 24, 2017 with a condition called Osteogenesis Imperfecta (OI). OI is a genetic condition that makes her bones very fragile. Ainsley was delivered via c-section with so many fractures radiology couldn’t count them all. Still she fought for her life and was finally allowed to go home 5 weeks later. Within the first 7 months of her life, Ainsley Grace underwent 2 brain surgeries and was diagnosed with a Type 1 Chiari malformation and basilar invagination (BI). When Ainsley Grace was 8 months old her family made their first trip to Delaware- 11 hours to get to a new group of specialists who they now can’t imagine life without. At 9 months old she had a 3-in-1 surgery where the OI neurosurgeon replaced her shunt (it had malfunctioned), she got a port placed (she gets an infusion every 8 weeks), and her left leg was rotated down and straightened. They now go to Delaware every other infusion and for all planned surgeries.
Special Treat: Ainsley Grace is our Sam’s Kids selected for the month of January 2019. Ainsley adores animals and would LOVE to see them as much as possible! We provided her family (and nurse) a Membership to the Louisville Zoo.
Ainsley Grace
About: Ainsley Grace was born on January 24, 2017 with a condition called Osteogenesis Imperfecta (OI). OI is a genetic condition that makes her bones very fragile. Ainsley was delivered via c-section with so many fractures radiology couldn’t count them all. Still she fought for her life and was finally allowed to go home 5 weeks later. Within the first 7 months of her life, Ainsley Grace underwent 2 brain surgeries and was diagnosed with a Type 1 Chiari malformation and basilar invagination (BI). When Ainsley Grace was 8 months old her family made their first trip to Delaware- 11 hours to get to a new group of specialists who they now can’t imagine life without. At 9 months old she had a 3-in-1 surgery where the OI neurosurgeon replaced her shunt (it had malfunctioned), she got a port placed (she gets an infusion every 8 weeks), and her left leg was rotated down and straightened. They now go to Delaware every other infusion and for all planned surgeries.
Follow her Journey. God Bless!
Ainsley on FacebookSpecial Treat: Ainsley Grace is our Sam’s Kids selected for the month of January 2019. Ainsley adores animals and would LOVE to see them as much as possible! We provided her family (and nurse) a Membership to the Louisville Zoo.
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