About: Charley is a beautiful soon to be 4 year old who is battling Pilocytic Astrocytoma (brain cancer) and an extremely rare neurological disorder, Diencephalic Syndrome, which is causing her tumors. This particular syndrome is characterized by failure to thrive, abnormal thinness (emaciation), amnesia, intense sleepiness, unusual eye positon and sometimes blindness. As a result of this Charley has completely lost her vision and is strictly tube fed. Despite the struggles she faces every day, Charley remains full of life, smiles and laughter.
Charley
About: Charley is a beautiful soon to be 4 year old who is battling Pilocytic Astrocytoma (brain cancer) and an extremely rare neurological disorder, Diencephalic Syndrome, which is causing her tumors. This particular syndrome is characterized by failure to thrive, abnormal thinness (emaciation), amnesia, intense sleepiness, unusual eye positon and sometimes blindness. As a result of this Charley has completely lost her vision and is strictly tube fed. Despite the struggles she faces every day, Charley remains full of life, smiles and laughter.
Follow her Journey. God Bless!
Charley on FacebookSpecial Treat: Charley is our Sam’s Kid selected for the month of May 2017. As her special treat, Charley requested a shopping trip to Toys R Us.
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